Adrenal Cancer
Adrenocortical carcinoma (ACC) is a rare and aggressive cancer with a generally poor prognosis that develops in the adrenal gland's outer layer. ACC affects about one in one million people in the U.S. each year. Patients with the best outcomes are under the care of physicians who have treated multiple cases of ACC, however, due to the rarity of the disease, there are few specialists across the world. ACC is considered an orphan cancer and consequently, does not get much dedicated funding or research. Treatment options are limited and are not highly effective. Jaydira Del Rivero, M.D and her team at the National Institute of Health (NIH) are dedicated to supporting ACC patients and developing novel treatment approaches and targeted therapies for ACC tumors.
Adrenal Cancer Challenges
Rare Disease Designation
ACC is classified as an 'orphan disease', affecting only 1 in 1 million people annually in the U.S. This designation leads to limited dedicated funding and research for this rare form of cancer.
Insufficient Research Funding
Due to the rarity of ACC, the disease does not receive significant research funding compared to more common cancer types. This hinders the development of new and effective treatments.
Limited Treatment Options
The limited research and funding for ACC has resulted in a lack of highly effective treatment options for patients. Current therapies are often not sufficient to stop disease progression.
Urgent Breakthroughs Needed
Without dedicated funding and research, the outlook for ACC patients remains poor. Increased support is crucial to drive innovation and develop more effective diagnostic tools and therapeutic strategies.
Lack of Specialist Care
With few physicians experienced in treating adrenocortical carcinoma, patients often struggle to access the specialized care they need. This can lead to delays in diagnosis and suboptimal treatment approaches.
One Million People.
One in One Million Cancer.
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ACC IS A RARE, "ONE IN A MILLION" CANCER. THAT'S WHY WE'RE RAISING $1 MILLION FOR RESEARCH, AND WE'RE STRIVING FOR 1 MILLION PEOPLE TO DONATE AT LEAST $1 EACH.
BE ONE IN A MILLION —DONATE TODAY AND HELP US FIND A CURE!
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